We took the babies to their developmental pediatrician this week for a check up... a long check up might I add, thanks Mamaw and Ashley for helping out! I love this particular appointment because the doctor looks at each baby very closely and is detailed with each part of the body and it's function. When it comes to having premature babies, parents desperately want to know how the babies' future will be affected by what they have gone through. During the NICU days we were ALWAYS told "only time will tell... we just have to wait" well we are slowly starting to get answers!
First of all each baby is at the 50th percentile OR ABOVE for weight for adjusted age! Brody and Kylee are actually in the 75th and up percentile WHOOP WHOOP! Ok, so it sounds like I'm kind of bragging right? Dang right I am, I never thought I would say my little 2pounders are now topping the charts at only 9 months old! With that being said we are adding more baby food and less of their high calorie preemie formula to their diet! Now for their individual info. Some of this you might find boring (and if so, please scroll down for pics!) but again our blog is our "baby book" in a way, so I document!
Brody is doing better than expected at this point, a little weak through his trunk area making it hard for him to sit straight and hold his head high for long periods of time (medical term-Truncal Hypotonia). His therapy was recently moved to 4 times a month. He weighs a whoppin' 18lbs 15oz, is at 25th percentile for his actual age and 75th adjusted.
Kylee dear is starting to show signs of cerebral palsy. We and her therapist have started noticing she doesn't use her left hand quite like she should and it stays fisted more than expected. Bret and I were told (while in NICU) she and Brody both have a high chance of having CP so we are, in a way, expecting it. No diagnosis was made, they like to wait until at least a year of age but the cards are stacked against her. If she is ever diagnosed it will most likely be a mild case, which we are grateful for :) For now we are increasing her therapy to 4 times a month and bringing in a developmental specialist to work with her as well. CP or no CP Kylee is and will always be our happy smiley little Miss Kylee! Her weight is now 17lbs 15oz 25th percentile for actual and 75-90th percentile adjusted!
Baxlyn is doing well overall. We have been working on her upper extremities for several months now during therapy. She is very stiff through her scapula and shoulder girdle area making it difficult for her to reach to the ground while in a sitting position and she naturally wants to keep her arms up and out to the sides. Her doctors and therapists are all confident she will outgrow her stiffness. Miss B now weighs 16lbs 7oz and is at the 10th percentile for actual age and 50th percentile for adjusted!
Korbin is doing great too! This kid is "crawling" everywhere... still a weird-almost-tip-myself-over-twist-and-scoot crawl, but a crawl none the less! He has high tone as well but through his hips and has shown major improvement over the last few months with OT. He now weighs 17lbs 14.2oz (love how he and Kylee are always neck and neck!) and is at the 10th percentile actual and 50th adjusted!
That's the update for now! Hope I explained well enough, this medical stuff is hard to wrap my mind around at times :) Feel free to ask questions if I left you confused! I promise the videos are coming and soon! But here are some pics to hold you over...
The Ladies Man
Big Broman
I thought this was so sweet. Sisters reading a night night story together...
Kylee minding her own business... reading eating her book and Baxlyn waiting for just the right moment...
to reach over and steal the hair bow! Soon enough you will have hair baby B, soon enough!
Aww, they are doing great! Making great progress and you sound to be right on top of things that need more progress, so that's all good! Boy, all four of your kiddos weigh the same or more than my twins at 12-14 months! Doing great, really!!! I would love to see a post on how you do it on a daily basis and keep your sanity and all!
ReplyDeleteIt was so much fun going with ya'll!! They were soo good!! I am soo proud of all of their developmental milestones!! They are all miracles!!!
ReplyDeleteGreat update. They are too cute and getting so big. I think that I say that in every comment that I make, but who would have ever thought they would get that big so fast when they started out so tiny! I LOVE the pics of the girls "reading". Too cute!
ReplyDeleteaww thanks guys, they are super big and were proud of them too :]
ReplyDeleteI just came across your blog and i thought i would comment on how precious your babies are!! You are very lucky!
ReplyDeleteI actually have a mild case of CP, just like Kylee may have and despite a rough start im as normal as you can get now, aside from some little muscle problems. I'll be keeping her in my thoughts and i hope that Kylee does as well as i have with CP!
aww, too darn cute! love the sister pics.
ReplyDeleteI think it is good you are increasing therapy. What will be will be, but it is WAY too early to even think about a label like CP (which has such a broad range anyway). I think your kiddos are doing great.
ReplyDeleteMy tiniest tot Tyger didn't take his first steps until 20 months old. We were afraid he would never walk and then one day he just stood up and took off. Now, at 26 months, he is the fastest of the bunch. They will all do things on their own time...not mom and dads which is very frustrating (at least for me it is). Chin up, you're doing a great job with those precious miracle babies!
Jac
You definitely get a great workout carrying around those cuties!! Way to go lil ones!! Keep it up!
ReplyDeletethanks for the updates and the pics....hope u all are well- talina
ReplyDeleteThey sound like they're doing great! Love the pic of the girls reading together. :) And then trying to steal sister's bow! HAHA
ReplyDeleteawww talina :) miss u guys!
ReplyDelete