Brody & Kylee had their 6 month check up with their developmental pediatrician a couple of weeks ago. Both are a bit behind in most areas but are making tremendous progress in getting where they need to be and “catching up” after their rough beginning. I always love these long appointments with our developmental ped. as we get a great, thorough examination and look at exactly where they fall developmentally and best of all, I always walk away with a renewed sense of pride knowing how far they’ve come! They both weighed in at about 31lbs and great news, Kylee’s head circumference is not only staying consistent with her own growth curve, but it’s on the charts!
This appointment Brody was “officially” diagnosed with Diplegia Cerebral Palsy, a form of CP affecting the legs. He’s always been a bit off when it comes to balance, coordination and such but lately he’s getting worse. His case is mild, thank goodness, but affects his daily life nonetheless. He has trouble with motor planning which makes little things like stepping up and down curbs or different surfaces, running & jumping hard to do. Despite stretching his legs on a regular basis he is becoming tighter and tends to tiptoe more than we’d like.
Sweet Kylee still battles her Hemiplegia CP as she continues to grow as well. Unlike Brody, she has started to jump and is able to get both feet off the ground – huge deal!! She’s started to run too! You can really see the way her CP affects her when she does her little run. The left side of her body gets pretty tense, her left arm comes in and fisted towards her side and her left foot turns in quite a bit, as she hops with her right foot over it. I’ll admit I think it’s adorable and I love watching her. The best part is she’s got a HUGE smile on her face any time she’s running and is clearly very proud of herself!
Brody & Kylee both are being fitted for leg braces to try to help them with their CP. This will be round 2 for Kylee and Brody’s first time in them. If you’re a long time follower you might remember Kylee wearing both an AFO & an SMO when she was 17 months old. Although she wasn’t walking at that point, she did well with the braces and they didn’t seem to bother her at all. She and Brody will both be getting AFO’s this time, Brody on both legs helping to hold his feet flat and giving him a good stretch and Kylee just on her left, guiding her foot to a natural position when she walks/runs.
They were both fitted last week for their braces and did great during their appointment. Although painless, in order to make their braces, they have to have molds made of their little legs . Kylee was NOT A FAN during her last casting, so I was a bit nervous at how they’d do this time. It was nice this time around, being able to explain what would happen before we got there. I had showed Kylee and Brody pictures from when Kylee was little and told them “yay, you get to get braces!”…which of course led Korbin & Miss B wondering why they don’t get to have braces…ugh, can’t win! Anyways, I told them both that Mr. Spencer was going to put mud on their legs and it was going to be SO SILLY!
Once we got in the room, we asked who wanted to go first and Kylee was ready and willing. She plopped up on Daddy’s lap with a smile on her face and was excited about the “silly mud”!
Brody sat close by keeping an eye on everything that was happening and Kylee sat and stole the heart of Spencer as he casted her little leg. She carried on a sweet little conversation with him the entire time…
Here she’s helping him by holding the “noodle” in place…
Once all was said and done he was all smiles and told Spencer “I fink I need a sticker now.” LOL!
I can only hope they do as well with the actual braces as they did with getting fitted for them. They should be receiving them in another week or so and of course, we’ll update you!