Cast-free Kylee! {4 weeks post SPOTT surgery}

Our Kylee is now cast free! She ended up being able to get it off 1-2 weeks early than we had anticipated – yay! I have to take a moment to brag on this little girl. She has made this entire process seem like a piece of CAKE. Seriously, she is such a brave, tough little girl and continues to amaze me as she grows!

I mentioned a while back that she happily starting crawling the day we brought her home from the hospital after surgery as it was much easier than being wheelchair bound. It was within 2 weeks she started applying pressure and walking on her left foot. Took us all (including her doctor) by surprise but she insisted she was fine and her doctor gave the OK as long as she tolerated it. Because of her smooth sailing recovery, Dr. Mayfield decided to take the cast off a bit earlier than planned.  You’ll notice her cast is no longer neon yellow and she is sporting the caution orange color here. Somehow she (ahem…Daddy) got her cast wet during one of her baths so had to have it re-casted which is where the orange came in. Bret and I took her this week to have it removed for good! She walked right in there like she owned the place and was happy to get the show on the road…

 

Below are pictures of her incisions… if you don’t handle stitches, incisions and a little dried blood very well, here is your warning to leave and come check the next blog post….

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Dr. Mayfield did a total of 5 incisions. Here are the first three on the inside of her foot. He started at the bottom, took a teeny tiny tendon, sliced it in half (length ways) and then proceeded to transfer it up and around the back of her leg using other incisions to help guide the tendon to the desired spot on the other side of her foot. The pink arrow is the incision where he did a gastroc release to help with her tone issues.

Here is the outside of her foot. You can see the tendon was brought around the back of her leg and again “weaved” under the skin where it was attached to the spot that the middle arrow is pointing to. You can see where the outside of her foot is calloused from walking on on it for so long. Her doc is confident over time and walking in a more natural position that it will all heal itself.

Kylee is now wearing a boot to help protect her foot a little longer. We’re unsure yet as to if she will go from this into a regular shoe or if she will still need to have extra support from an SMO (brace) of some sort, like she wore prior to surgery. She will go back to Cooks in 4 weeks to check her progress and to discuss the next step. Obviously we would love for her to FINALLY be brace-free but understand there may be a few more hurdles to jump before we reach that point, and that’s ok!

Now… some before and after pictures! Here’s a pretty typical picture of Kylee’s foot before surgery. This one was taken in October.

This one was taken at the hotel the night before her surgery. While we could physically manipulate her foot to (somewhat) point it forward, it always went back to this position. Walking, running, standing still, with a brace, without a brace, with or without wearing shoes THIS is what she dealt with 24/7. Although she has never seemed to mind, it was painful to watch and unfortunately, it was only getting worse as the months passed.

Ready for this?! Kylee’s foot as of yesterday…

Seriously. Look at how freaking great she looks! This is NO manipulation at all and is all her. Although she is walking well in her boot, she’s still very hesitant to walking barefoot. The first time she stood without her boot she cried and sat back down immediately. I’m not sure how much of it is pain and how much is just that weird sensation of not having your foot being held in one position because of the cast. Dr. Mayfield said we can expect it to be tender and sore as things loosen up again. I’m very anxious to see once she does start walking on it how everything looks but for now, Bret and I are so please and even more so thankful we have amazing doctors that help our babies thrive!

Here are a couple of shots from the back BEFORE surgery. This is a good representation of the best position we could get her foot into before..

…and a look from the back post-surgery!

There have been several times over the past few weeks, while in her cast, that we notice her leg/foot still turned inward. Her neurologist and surgeon are keeping an eye on the rest of Kylee’s left leg. We’ve had several doctors think she has a mild case of tibial torsion (where the tibia twists abnormally) going on while others don’t think it’s an issue. One thing that is certain is that kids with hemiplegia cerebral palsy are at a very high risk for abnormal bone development on their affected side. We’ve been told over time, there’s a good chance Kylee could develop other issues further up her leg that we may need to address. All of that, of course, depends on her growth and the results we see from this surgery. While it seems obvious her foot will be MUCH better from here on out, what we don’t know is how much of that twisting was her actual leg and not just her foot.

Before we left Dr. Mayfield’s office she let him know she was “ready for him to fix her left hand”. Bless her heart. Makes me sad but also happy at the same time knowing she feels that safe with him! He explained to her that he doesn’t work on kids’ hands but his very good friend did and that as soon as we finish up her foot, he would be happy to introduce her to Dr. Sherman. One thing at a time, baby girl!

Thank you all for your support through this surgery (and the others we just had!). We greatly appreciate all of the prayers, the cards, the meals and the extra help with the kiddos. Bret and I are so so blessed to have so many people who care and who back us through whatever is thrown our way!

Kylee & Brody – Botox {Round 3} What an Update!

Boy what an update do I have when it comes to Botox injections! Kylee & Brody just received their 3rd round of Botox (May 15th) and this time we had/are having a completely different experience than the previous times. See their first two rounds here and here. Those of you who have followed our story for a long time know the history, but here’s an overview for any newbies to our blog. Brody & Kylee, born at 28w5d gestation, suffered Intraventricular Hemorrhages (aka brain bleeds & IVH). Their IVH left them with permanent damage and resulted in Cerebral Palsy. Kylee was diagnosed with Hemiplegia CP (where one side of her body is affected) at around 9months of age and not long after that, Brody was diagnosed with Diplegia CP (both legs affected). They both have been in therapy since being discharged from the NICU and it’s been a constant battle to try to help with their physical development/balance/coordination and tone issues. Botox is used in CP kiddos to help “temporarily paralyze” the tight muscles. The injections stop the signals between the nerve and the muscle, relaxing the muscle and reducing stiffness. Botox only affects the muscles that are injected and once the muscles are relaxed, therapists are able to stretch the muscles and stimulate normal growth.

Today I’m focusing mostly on Kylee’s left leg/foot. Her CP is most noticeable to the eye and is easy to see in pictures. It’s fairly easy to see something is “different” about her walk where unfortunately Brody just seems to be really slow and I’m afraid is mistaken as lazy sometimes. He is very weak through his trunk and legs and struggles to walk/run fast. I’ll start with pictures of Kylee’s foot BEFORE this round of Botox. Again, this is her 3rd round but Botox is temporary and only lasts a few months give or take. You can see her entire leg twists inward, especially her foot which makes these cute little dainty sandals nearly impossible to wear…

I couldn’t bear to zoom in on her foot here and crop out Blade’s precious cheeser face… seriously, how CUTE is he?!?!

You can see more before pictures on THIS post as well as a link to see her run (which has worsened tremendously since February).

This is Brody & Kylee just a few weeks ago on their way to Cook Children’s for their Botox. Notice it’s daylight outside? This was our first treatment done in the neurologists office with NO anesthesia which meant we didn’t have to get up at 3am – YAY! Their previous injections were done by a different neurologist. We only saw insignificant results (if any?) and for other reasons as well, we chose to switch doctors. This round was scheduled with Dr. Acosta, a doctor who came HIGHLY recommended by several parents as well as Brody’s neurosurgeon, Dr. Honeycutt. We were also told her her orthopedic surgeon “if anyone can hit the specific muscles Kylee needs, it’s Dr. Acosta”. Upon meeting with Dr. Acosta several months ago, he informed us that he prefers to do his injections in the office. Each time before we went to the operating room, the babes were put under anesthesia, spent a while in recovery..etc. It was always a LONG day for all of us.  Dr. Acosta insisted a little “happy juice” to silly them up was all we needed to get through the procedure which literally takes seconds. I was a bit hesitant, but trusted his judgment and agreed to do it in office.

Within minutes of getting to the hospital, a sweet lady came in and surprised Kylee & Brody with a therapy dog named Chanel! So cool and SO unexpected! I figured we just got lucky and were there when Chanel was scheduled to work but I learned that she was there FOR them and was there to stay for their entire appointment! The lady told Brody & Kylee that Chanel was a quadruplet too and that her quadruplet siblings (two girls and one boy) were also therapy dogs! As you can imagine, Brody & Kylee were in HEAVEN!

 The lady sat and talked to Brody & Kylee about what was going to happen during their visit that day. She explained they were going to get happy juice, get a few pokes, that Chanel was going to be with them the entire time and that their only job was to sit still like a statue when it was their turn. She then let Brody & Kylee play with Chanel, brush her, play fetch with her, feed her and so on.

 

The nurses offered Brody & Kylee a choice of either sipping their happy juice out of a small cup or having a nasal spray (much like the flumist). Kylee chose the cup while Brody went with the spray. When they went to spray Brody’s instead of sniffing inward, Brody, of course, blew out of his nose landing a good amount of the meds on his shirt. Kylee managed to hold her happy juice down (puked it up last round) and within minutes was LoOoOpY. Dr. Acosta asked which kid wanted to go first and Brody – NOT LOOPY AT ALL - stood up to the plate. I just knew this wasn’t going to be good, he wasn’t the least bit affected by the happy juice. Kylee and I, along with nice lady and Chanel went into the room next door in case Brody freaked out (no need to let them see each other’s torture, right?). Brody ended up receiving a total of 8 shots, 4 in each leg and didn’t cry until the very last one. Bret & the doc said he was SO brave! Dr. Acosta came right into Kylee’s room. She was so far gone, she couldn’t even tell you her own name, but when it came time to get the injections she somehow knew exactly what was going on. Chanel sat on the table next to her and it took three of us to hold her still but ultimately Dr. Acosta successfully administered 4 shots to Kylee, 3 in the leg and one in her left arm, all within about 20 seconds. Kylee then went in and out of mood swings for the next hour or so…one second she was cracking up, the next she was crying, then she would nearly fall asleep and then happy as could be again. Quite an entertaining scene as we left the office for sure! Here are a few “after” pictures of Kylee during her happy moments ;)

Now for results. I’ve never been able to show you huge results in follow up posts before but am SO happy to say that just weeks later we have seen HUGE progress with Kylee’s foot! Within just two weeks we were noticing (as well as her physical therapist AND teachers at school) her foot staying in a MUCH better, more natural position. Seriously like night and day with the positioning of her foot. Dr. Acosta hit those muscles responsible for keeping her foot tilted and turned to the left dead on and they now don’t have control like they did before. Here are the after pictures. I simply asked Kylee to stand in front of me. I didn’t manipulate her foot one bit in these next pictures – crazy difference!

You may remember Kylee getting fitted for a new AFO (brace) back in February. Unfortunately it didn’t work out for her for several reasons. First and foremost it hurt her and secondly it didn’t hold her foot in the position we were aiming for. While we didn’t expect it to help rotate her foot to face forward, we were hoping it would keep her from walking/running on the side of it (like pictured in linked post). Her tone was so bad that it overpowered her brace, even with straps secured tightly, and her foot held it’s awkward position inside the brace, making it pointless in the end. After several attempts at altering the brace, our Syngery office (now bought out by Hanger Prosthetics) agreed to make her a new one to replace it. They created a smaller, slightly more flexible SMO and Kylee tolerates it much much better than the AFO she had. While I think the Botox has made the most difference for her, a better-fitting brace only helps!

Like most people with CP, Kylee & Brody’s tone really kicks in when they’re excited or doing physical activity. Most people wouldn’t notice Kylee’a arm/hand being affected, until she goes to run that is. When in motion like running, or even walking fast, her tone kicks in and her arm naturally holds tightly to her left side and her fist tightens just as her foot looks much worse when she attempts to run. Here is a picture of Kylee this past week during physical therapy doing a throwing and catching exercise. Normally during such a physically challenging task, her foot would turn inward. You can see here that her left foot is far more relaxed and facing forward as it should…

Below is another “in-motion” picture of Kylee walking – sorry so blurry. Again, normally her foot would be turned significantly but you can see, even in motion, it’s staying pointed forward!! HUGE!

 A couple more after shots…

Now….sigh… with the good comes the bad.

While the Botox did exactly what it should, weaken the muscle, the Botox also did exactly what it should…. weaken the muscle.

Kylee and Brody are both naturally at a higher risk for falling due to their CP. It’s not uncommon at all to see either of them, especially Brody, fall multiple times during any given time. Whether walking from the table to the sink or playing on the playground, our sweet Brody falls far more often than the average 5 year old. Now that we’ve added (successful) Botox injections to the picture, their legs are weaker than they were before. All in all this is a good thing because we, along with their PT, have an opportunity to really stretch the muscles that were, a few weeks ago, extremely tight. This also means that walking, running and everyday activities are harder than usual. Kylee & Brody both have a had a really hard time during their last few tee ball games and can (literally) hardly run at all. They can make it mayyybe one fourth of the way to the base they’re running to before they tire out. They actually had their last tee ball game this afternoon and Bret joined them on the field to help them run from base to base after they were up to bat, so sweet to watch :) Kylee, who always appears to walk with a limp, looks like she has suffered a big injury with the way she’s walking now. Although it looks like it, they’re not in pain, but just really weak. Kylee says “my legs are not working good”. The muscles that she is (they are) being forced to use are not used to working so we’re working on strengthening all we can. We’re praying over the next few weeks Kylee & Brody will gain a little strength and not have such a hard time.

Like I mentioned above, Botox is temporary. It’s a “Band-Aid” as some would call it. Eventually it will wear off and we will likely be back where we were assuming the tone kicks back in, which likely it will since Cerebral Palsy is neurologically based. We will re-visit Dr. Mayfield, her orthopedic surgeon, in 2 weeks to let him assess her and give us his thoughts regarding the SPLATT surgery we mentioned before. Brody will also be seen by Dr. Mayfield for the first time that day. For now, we’ll stretch and play and stretch and play while we try to strengthen their little bodies. Please keep our littles in your thoughts and prayers.

For those of you who mistakenly think prematurity doesn’t last forever, please know that sometimes…. it does. While I’m INCREDIBLY thankful my sweet babies are here today, I HATE that they continue to go through so much all because they were born so early. Again, I am so proud of all they’ve overcome and vow to do whatever it takes to help them thrive and succeed.

Brody & Kylee, know you are loved, my sweet babies. In your weakness you are SO so strong. <3

Confident Kylee & A New Doc.

We had our appointment with an orthopedic surgeon a few weeks ago regarding Kylee’s foot/leg. We LOVED Dr. Mayfield at Cook Children’s and found out he works closely with Dr. Acosta, the neurologist who will be administering Kylee & Brody’s next rounds of Botox in May. He said her tibial torsion wasn’t as bad as we were told initially so that is good news. He also said while Kylee’s brace is probably helping more than hindering, he doesn’t think it alone will have much of an effect on her foot positioning. Our plan for now is to follow up with Dr. Mayfield within 2 weeks of the Botox injections so he can see how the specific muscles reacted to the treatment. It is that appointment that he thinks will confirm what he already predicts will help Kylee the most, which is a surgery called the SPLATT Procedure. The surgery would be transferring half of the tendon from one side of the lower leg/foot around to the other side in hopes that the extra tension will help correct her foot position. Bret and I asked a lot of questions at the appointment and have done a bit of research since then but are not hanging on every word just yet until we see how this next round of Botox goes. Their Botox in the past has not shown us a HUGE improvement. After examining Kylee’s condition, Dr. Mayfield (who also knows our previous neurologist) told us that Dr. Acosta spent a significant amount of time targeting this specific area where Kylee needs the most help. In his words “If anyone can hit the right spot with a Botox treatment, it’s Dr. Acosta”. We feel very confident in his ability and the ability for the two doctors to work together as a team to figure out the best treatment for Kylee.

Over the course of their little 5 years of life, our crew has seen a countless numbers of doctors for many different reasons. Adding a new one doesn’t even phase them these days. Kylee was so comfortable with Dr. Mayfield! She did a lot of the talking during the appointment, told him all about her leg and how it affects her, her therapies…etc. At one point (when trying to reference her hand splint she used during restraint therapy a long time ago) she said “…there’s this thing, in my panty dwawer (drawer)…” Everyone in the room did all they could not to laugh out loud but Dr. Mayfield managed to hold it together, smile back at her and say “In your panty drawer, huh?!” It makes us so proud to see her so confident and be able to talk to people to openly about the things she struggles with!

For now, Kylee wears her brace only a fraction of the time. She complains that it hurts and by the looks of the way it fits, it’s no surprise that it would hurt. She tolerates it for an hour or so before wanting to take it off. We’ve taken her twice now to have it adjusted but the orthotics consultants feel they’ve done all they can to make it fit her leg/foot. It’s a bit frustrating as a parent, but we’re doing what we can do while trying to keep Kylee in good spirits. The last thing we want her to feel is “different” in a bad way, ashamed or overly worried about the way her Cerebral Palsy affects her.

We would appreciate if you threw up a prayer for us every so often that we continue to place our kids in the right doctor’s care and that over time we have the right guidance regarding their treatments. Thanks!

Our Determined Daughter {Kylee Mae}

If you’re a regular follower of our blog, you know that Kylee was diagnosed with Hemiplegia Cerebral Palsy at 11 months/8 adjusted. If this is new information, you can learn more history here and here. As we’ve been told by many docs that it would, her conditions are slowly getting worse over time. Her left leg, ankle & foot are our main concerns at this point in time. Kylee’s left foot has always turned inward and unfortunately an AFO (brace) won’t help correct it’s positioning due to her entire leg/hip being involved. Below is a picture of the bottom of her feet to give you a close look. Her left foot is also slightly smaller than her right (very common with Cerebral Palsy) as the bones often develop and grow at different rates. Her left foot fits a size 10 shoe and her right is a 11.5.

More pics to show the inward turn of her left foot…

Not only is her foot turning inward more than it has in the past, she is now walking on the outside of her foot as well. It doesn’t seem to bother her at all but it looks awfully painful watching her run and it looks as though her little ankle could snap easily. As she runs, her body tenses up on the left side (arm and leg) causing that foot to turn inward even more. She ends up literally hopping over her left foot with her right.

(Click HERE to see a short clip of her run. Excuse the poor quality.)

Over a long period of time walking & running like this, her condition will likely worsen and could affect her overall posture, balance and spine as well. We recently met with a new neurologist, Dr. Acosta, at Cook Children’s in Fort Worth and plan on doing several more rounds of Botox on both Brody & Kylee, hoping to get deeper into the muscle in order to loosen things up to allow good stretching. Dr. Acosta also strongly believes Kylee has Tibial Torsion which is where the tibia/shinbone is rotated out of position. Kylee has also been referred to an orthopedic surgeon there at Cook Children’s to further discuss the severity of it all and possible treatments for her left foot. Surgery is sometimes an option to help correct a condition like Kylee’s but as always, it comes with risks. I’m trying not to stress the surgery option until we meet with the orthopedist next month.

Overall Kylee has a GREAT attitude and handles having a disability very well. Lately she’s been asking more questions about her left foot, her left hand, why she and Brody have to see so many doctors and why Korbin and B don’t. She sometimes asks why she can’t do certain things that Baxlyn can without falling and why she can’t walk in little princess heels and other cute shoes like Baxlyn. It hurts my heart as these are just some of the beginning realizations she will come to but yet I’m happy she handles it well. Sometimes it’s hard trying to explain such things to a not quite five year old, but I try. I desperately try to find that perfect balance between being honest and open with them about their birth and scaring them into thinking there is something “wrong” with them. I want them to know just how strong they were (and are). I want them to know that God has a plan for them. I want them to know that with determination they can do anything, despite a disability or diagnosis . I want them to understand some day just how PROUD we are of them…and I want them to be proud of themselves as well. For now they can understand that “they were very little and sick when they were born. The nurses and doctors helped them feel better and now lots of doctors try to help make sure they are healthy and strong.”

For the time being, we’ve had Kylee fitted for a new brace. We’re aware that the brace will not help the inward turning of her foot but we are hoping it will help the “rolling” of her foot causing her to walk on the outside of it. This will be Kylee’s 4th brace, the 3rd on her left foot. She’s become a pro at being fitted and it doesn’t bother her a bit these days!

Kylee being fitted for the first time in June of 2010

 Kylee today :]

After anxiously waiting for a couple of weeks, we went to pick up her new brace yesterday. She was so excited to see how it turned out with the butterfly pattern she chose along with pink straps.

Here she was this morning ready to head off to pre-k and show off her brace. She insisted I roll her pants up so that all of her friends could see – melts my heart. I LOVE that she is proud of her brace and that it doesn’t affect her confidence. I can only pray she can keep that spirit as she continues to grow.

I’ll end by saying as Brody, Baxlyn, Kylee & Korbin get older I find myself questioning how much I should put out there for all the world to see. While I blogged just about everything when they were babies I find myself pulling back just a little now days. One day I know they’ll look back to read all I have written and I don’t want them to feel as if I’ve put their entire lives on display for the world. That being said there are SO many families who can learn from our experiences. I’ve received countless emails from parents who delivered premature babies, found our blog and saw a glimpse of hope for their little one. Whether potty training, trying to keep clothes on your kid who likes to be naked or seeking possible treatment options for cerebral palsy, sometimes another mother’s point of view can be helpful! It’s for that reason, for now, that I continue to share what I do!

Brody & Kylee–Botox Injections

Thanks to all for the sweet messages, calls, texts and prayers for Brody & Kylee. Being up at 3:30am made for a lonnngg day, but all went well! We’ve been told for a while now that Brody & Kylee, due to their Cerebral Palsy & hypertonia/dystonia (tight muscles), may be good candidates for Botox. Even with physical & occupational therapy, constraint therapy, orthotics and endless exercises and stretches, these two will likely have minor issues due to their CP for years to come. After visiting with their neurologist in December, he thought it would be good to give the Botox a shot.

“Following intramuscular injection, the neurotoxin causes a reversible neuromuscular blockade, creating both muscle weakness and a reduction in tone.” We were told that basically the Botox will temporarily paralyze or weaken the nerve endings allowing more flexibility and allowing us to stretch their muscles more effectively.

Brody received 8 injections, 4 in each leg. Because of his tone, Brody toes walks from time to time and his legs stiffen when he runs or gets excited (diplegia CP). Kylee’s hemiplegia CP affects her left side. Her left foot turns inward and she’s also very tight. The doctor used a special needle to both electrically stimulate the muscles and deliver the medication in her leg and hand. She received 5 injections in her left leg as well as one near the thumb in her left hand hoping to give her more range and a more natural and easier grasp. Kids don’t always have to be put under anesthesia for the procedure but given the fact that they’re young, there’s two of them (one will freak the other out before it’s their turn) and they both were going to receive multiple shots, their doctor thought it was best they were asleep for it all.

We took some video of both Brody & Kylee before their injections doing daily things that show their tone and difficulty. We were told that we won’t see any improvement for 3-7 days. Once we do (hoping we do, at least) we’ll show the before and after videos so you can see for yourself. After talking to many of their doctors as well as other parents of kids with CP we’ve learned most people see great improvement after the shots. The Botox can last anywhere from 2-6months depending on the child and the severity of their tone. Many kids continue treatments as needed. We’ll visit the neurologist again in 2 months to discuss how it worked for our two and if continuing treatment will be beneficial. Here’s a helpful site with additional info: http://www.cerebralpalsysource.com/About_CP/botox_cp/index.html

We had the procedures done at Cook Children’s in Fort Worth, the same place Brody had his shunt placed at 32 weeks gestation. His neurosurgeon and their neurologist work side by side which is a plus for us. It was still dark when we arrived at the hospital. The roof of the building is trimmed in blue lights, very pretty if I do say so myself. Upon seeing it Brody squealed from the back seat “Oooohhhh I’m sooo essited!”

Here’s Kylee after taking her “happy juice” while waiting for Brody to be sent to recovery. Girl was loOoOopy! She attempted to sing her favorite song “Pontoon” by Little Big Town and insisted her name was “Grandmudder”. Bret and I had some good laughs while chatting with her, that’s for sure :)

The procedures were pretty simple and only took about 15mins each. Bret & I went to be with Brody and Kylee joined soon after. Poor dude tried and tried to talk to us while waking up but nobody could make out what he was saying. Once he gained speech he immediately asked “Where’s my coke?”. He had chosen a cherry coke flavored gas as he was going to sleep but apparently he thought he was gonna get an actual coke (which would be a real treat for them) somewhere in the process! The nurses hooked him up with a sprite and that may have been the highlight of his whole experience..ha! I also heard him mumble to the nurse that he wanted to watch the Dallas Cowboys. Mickey Mouse clubhouse had to do ;) The injection sites are so small you wouldn’t even notice them if you weren’t looking. Kylee’s 2 failed IV attempts were another story :/

A few popsicles and sips of sprite later they were ready to go. The anesthesiologist came in and gave the go ahead to have IVs removed. Bret was out of the room and I was over with Kylee only to turn around and find Brody had removed his IV by himself…blood everywhere. Didn’t phase him a bit but freaked his me out until I figured out what had happened!  The nurse came in and Brody proudly told her “you were not here, so I did it!”

It was within just a few hours that Brody & Kylee were up and at it just like normal. No complaints of pain or soreness in their muscles or at the injection site which makes mom and dad super happy! They know they received something called Botox to help them but have no negative associations with the whole process which is great if we do continue treatments. We’ll update soon with their progress!

The fight against prematurity continues…

…tomorrow it is in the form of Botox. Kylee & Brody will each be having several injections in the wee hours of the morning (Thursday the 7th). We’re new to this procedure and have been told it’s a relatively easy one. That being said they will still be put under anesthesia. If you could, please say a lil’ prayer for these two little warriors and that things go smoothly and that the Botox can relieve them (temporarily) from some of the affects of their Cerebral Palsy and hypertonia. We’ll update soon with more details and show you video of before and after, assuming there’s improvement.

Thanks!